Dear Friends:

We will be hosting along with the Golden Benefit committee and Mrs. New York America the Mark Farruggia 11th Annual Golden Benefit Charity Golf Classic and Dinner, Pride of NY Wine and Cheese Tasting on July 19, 2008 for Hunter's Hope Foundation and Neuromuscular Disease Center at the University of Rochester Medical Center at Conesus Golf Club, Conesus, New York. We would appreciate your participation as a golfer, dinner guest, company sponsor or gift-in-kind sponsor to raise money for both of these fine groups.

Mark started the Golden Benefit Charity Golf Classic because he had his life altered by Charcot-Marie-Tooth or CMT, the most commonly inherited neurological disorder, affecting 1 out of 2,500 people or approximately 150,000 Americans. CMT is found world-wide in all races and ethnic groups. It was discovered in 1886 by three physicians, Jean-Martin-Charcot, Pierre Marie, and Howard Henry Tooth.

Hunter's Hope Foundation was established in 1997 by Pro Football Hall of Fame member and former Buffalo Bills Quarterback, Jim Kelly, and his wife, Jill, after their infant son, Hunter, was diagnosed with Krabbe Leukodystrophy, an inherited, fatal, nervous system disease. The Foundation is the Kelly's life long commitment to increase public awareness of leukodystrophies as well as to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts, identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies.

The Neuromuscular Disease Center at the University of Rochester Medical Center offers state-of-the-art comprehensive care to over 4,500 patients affected by neuropathy, ALS, muscular dystrophy, myasthenia gravis, and other neuromuscular disorders. The Center strives to provide patients and their families with the tools, resources, and emotional support they need to understand and meet the challenges of their diseases so they can live their lives to the fullest. Physicians and scientists at the Center are actively involved in research to uncover the mysteries of these neuromuscular disorders and to develop new treatments.

Sincerely,
Mark Farruggia
goldenbenefit@aol.com
www.goldenbenefit.org
585-519-1917

Kevin Regan
Co-Chairman
Owner: Conesus Golf Course